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  #1  
Old 06-22-2008, 08:00 PM
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hydroxybutane hydroxybutane is offline
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My Little Singing Angel

I had mentionned in chat on Friday that I was being driven batty by B, who has FAS. Basically my fustration at her not being able to follow directions...forgetting things...sending her to get her shoes and she's walking around in circles...

Part of this is she has never been expected to do these things for herself...and I'm determined to make her try!! So some of it is a battle of wills and time...she knows if she waits long enough someone will do it for her..but then I feel bad because some of it her inattention and distractability....agghh..I'm going off topic LOL

My little angel...loves to SING!..She can't always remember the words, but she is good singer and is always humming to herself.

Our church choir director heard her one day and asked me if she might be interested in singing occasionally with the choir. B enthusiastically said yes, although she did ask if it would be alright if she covered up her eyes with her hands cause she's a little shy LOL...She has since sung with the choir..and yes..usually has her hands over her eyes..

Tonight my little angel had a solo...yes my shy, FAS angel..She took part in a special concert which was a fundraiser.

She had a special cassock (hemmed to the max cause we couldn't find one short enough) and with her white surplice over top...it was easy to pretend she was an angel...

I was really afraid she would be scared...she is really shy...but she came right to the front of the choir..and sang out " Lord, Thou hast been our refuge".....and then was joined...with the rest of the choir....and her voice was the last heard...with "Lord, Thou hast been our refuge"..I have never seen her so confident before..

And mommie was in the back..crying like a baby..
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  #2  
Old 06-22-2008, 08:14 PM
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Lylac Lylac is offline
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Aww I know your one proud momma!! And you should be!
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  #3  
Old 06-22-2008, 09:22 PM
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Yeah! She did it!
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Old 06-22-2008, 09:44 PM
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What a great story! You made me hear her voice - and feel your tears of pride. Congratulations to you both!!
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  #5  
Old 06-22-2008, 10:04 PM
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oh wow hydroxy... I wish I could have been there to pass you the tissue! That is so awesome!
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J, bio son: born Feb '96
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E adopted son: born Sept '99, adopted November '05
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[I"]Jeremiah 29:11for I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future.[/color][/i]
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Old 06-22-2008, 10:14 PM
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Yay I love it that kids even after some scary moments in their lives can find things within themselves that make them shine!!!!
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  #7  
Old 06-22-2008, 10:44 PM
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Your story brought tears to my eyes. I can only imagine how amazing it must have sounded to you.

Congratulations at finding your daughter's voice!
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06/6/08 Spent the weekend with "A"!!
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  #8  
Old 06-23-2008, 06:01 AM
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That's awesome! I am sure it will help her self confidence.
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  #9  
Old 06-23-2008, 08:26 AM
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Awesome
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  #10  
Old 06-23-2008, 09:54 AM
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Awww that is so awesome!

Good job B!
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  #11  
Old 06-23-2008, 10:44 AM
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That's COOL!

I wonder if she would do better if you SANG the instructions to her and had her sing them back to you? It wouldn't help the battle of wills, but it may bypass the disconnect in her brain?
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  #12  
Old 06-23-2008, 12:40 PM
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Congrats on your little angel singing!

Our son with probable FASD sounds very like your Dd. I get so tired of repeating instructions! LOL

We bought a polaroid camera and took pictures of him doing his chores in the hopes that having a visual reminder would help him get through his chores more easily. (he's very visually oriented) NOPE! He's also very (very) concrete and he took one look at the photo of him doing his chores and went to change his clothes into the clothes he had on when we took the picture!

Once we explained that he didn't have to wear the same clothes we tried again with the chores. NOPE! He was looking and looking in the dishwasher, but couldn't find the spoon he was removing from the dishwasher in the photo. Ack!

So we ditched the Polaroid and I started pinning pictures of stick figures doing chores on his shirt cuffs. LOL Now he can do one chore without such constant reminders, but I do have to prompt with suggestions that he finish his job, etc. It has gotten better...even if it isn't all resolved.
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I expected that there would be times like this - but I never thought they'd be so bad, so long, and so frequent.

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Old 06-23-2008, 04:20 PM
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Oh Barksum...I feel your pain..I so so feel it...B has probable FAS too! LOL

We have tried pictures, but we have the same problems as you...She gets more confused because the picture doesn't match what she is supposed to be doing..

We are using a strips with velcro pictures..arggh I forget the name of the pictures..They are standardized and I can print them and laminate them.

It sort of works...kind of hit and miss..

Aspen I was thinking I could sing the directions to her...doesn't work..she just looks at me puzzled and says..that's not the words to that song! oh well...
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  #14  
Old 06-23-2008, 05:08 PM
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Doesn't that make it all worth it--at least for the next day or two???


Quote:
Originally Posted by hydroxybutane
We have tried pictures, but we have the same problems as you...She gets more confused because the picture doesn't match what she is supposed to be doing..

We are using a strips with velcro pictures..arggh I forget the name of the pictures..They are standardized and I can print them and laminate them.

If I'm guessing correctly you're talking about PECS, they are often used with children who have autism. They are less detailed, so hopefully you could avoid the overly concrete thought process! Never tried using them with children who have FAS, but I can see how it may work for some. If they have trouble with symbolic representation it may not work as well. Google "Free PECS" you can find several websites that have them available.
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Old 06-23-2008, 05:41 PM
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Could you do a visual checklist for each chore?

OR, give her a ticket book/punch card and as each task gest completed she comes to you for a punch/signature/sticker type thing and you give her the next set of instructions?

I've used pecs and they are like a visual sign language for the child to show YOU what it is they need/want to say.
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