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#1
08-18-2009, 06:00 PM
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OT~ Request for my praying friends...
Alex needs to have an eye test on Thursday...this will give us definite answers as to what his vision is and whether or not his vision loss is permanent. We are driving down to Bascom Palmer Eye Institute tomorrow and then again Thursday morning for a sedated electroretinagraphy. Even though he has been put under before...I am, of course, more nervous based on his current health issues and medications...but I'd be nervous regardless.
So, if you are of the praying type...please pray for our safe travels (I hate driving to Miami and I am traveling with just DS tomorrow...no DH until Thursday)...please pray for his doctors...please pray for my boy...and finally for our acceptance of whatever the results happen to be. Also, please pray that the heart murmur the pediatrician heard yesterday in his clearance check-up turns out to be an innocent murmur...we go to the cardiologist on September 3rd. It was not enough to keep him from being sedated but her direct quote was 'We don't want to take any chances because this is Alex we are dealing with.' (I honestly feel she is probably overreacting based on her self-imposed feelings of guilt over missing his JRA...which she should not feel bad about...we don't.) Anyway...I appreciate it and thank you for all the support you all offer here. Thanks...
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Proud Mommy to two...who have taught me I can not change their pasts but I can change me and the way I parent them~ *Yaya~My Siberian Sweetie ~born in 2001~Home 2002~Now 8 and a 'Tween', and in 3rd grade. She's all girl!!!  *Bubbs~My Samaran Sunshine~born in 2003~Home 2004~now 6, in Kindy and such a sweet, silly & special boy!  'My wish, for you, is that this life becomes all that you want it to, your dreams stay big, and your worries stay small, You never need to carry more than you can hold, and while you're out there getting where you're getting to, I hope you know somebody loves you, and wants the same things too, Yeah, this, is my wish.' ~"My Wish" by Rascal Flatts 
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#2
08-18-2009, 06:22 PM
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Prayers and (((hugs!)))
Let us know how it goes!
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Debbie - Mom to 3 Including 2 from Guatemala Community Moderator
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#3
08-18-2009, 09:36 PM
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Im not a praying type but I will think of you guys and wish you the best! Keep us posted.
Amy K, NJ
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Adopted baby Joanna from Tver Region 10/06
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#4
08-18-2009, 10:38 PM
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Hoping all the best..
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#5
08-19-2009, 05:30 AM
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You guys are in my prayers. Our little girl has been home a year this past June, she just got clearance from the heart specialist, Heart murmur is gone! I will send the vibes your way for another good report!
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#6
08-19-2009, 06:43 AM
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Lots of prayers coming your way my friend! Keep us updated
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Proud and Lucky Mom of Adrian (A-09/29/04, St. Petersburg)
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#7
08-19-2009, 08:22 AM
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Prayers going up from here.
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Lorraine   Mom to:  S- my 16 year old son -Aspergers, but doing great! W - my 14 year old son- caretaker to his siblings. P- My 10 year old Russian princess, two prosthetic legs, dancer extrodiaire Home June 2000 M- 9 No legs, one arm, fast wheels!Home November 2006 from Poland!  Dh - Often just another child, but mostly my best friend and a pretty understanding guy.A clean house is a sign of a broken computer Moderator http://momrainefamily.blogspot.com/
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#8
08-19-2009, 04:41 PM
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The girls up north will keep Alex and your family in our prayers.
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A Mom No Longer Waiting! Tver, Russia - Oct 2003
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#9
08-19-2009, 07:09 PM
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Prayers coming your way!
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Christina Big Boy (b. 9/1/01 a. 11/16/04) Buttercup (b. 6/8/04 a. 11/16/04) Vladivostok, Russia Every life event presents an opportunity, a gift. You just need to look closely to find it.
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#10
08-20-2009, 05:29 AM
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Good luck and praying for you, your family, and the doctors.
__________________
9/3/08 Signed w/agency 9/8/08 Sent I600A form w/out Homestudy 9/20/08 Homestudy started 9/22/08 Mailed fingerprints to FBI 10/2/08 FBI OK'd us 10/15/08 Biometrics done for I600A 11/24/08 Homestudy mailed to complete I600A 12/15/08 Dossier to Russia 1/20/09 I171H received 4/9/09 Received 2 refferals! Boy and Girl! 4/15/09 Now have 1 of 2 referrals. 4/21/09 Received 2nd referral! 4/28/09 Accepted 2nd referral and waiting on 1st trip! 5/11/09 Child #2 is no longer available, back to waiting for another referral. 5/27/09 Still waiting for trip #1 for referral #1. 6/15/09 Dossier done. Waiting for referral for #2. Still waiting on travel dates for #1. 6/17/09 Travel dates for #1! 6/25/09 Waiting for #2 after home with #1. 6/27/09-7/4/09 Trip #1 completed 12/4/09 No court date yet. New set of docs sent to Russia...didin't like the apostille and now the docs are sarting to expire  
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#11
08-20-2009, 10:24 AM
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it's 1:30... praying for wisdom for the specialists... and trust and peace for your boy.
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"As you do not know the path of the wind, or how the body is formed in a mother's womb, so you cannot understand the work of God, the Maker of all things." Ecclesiastes 11:5
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#12
08-20-2009, 10:48 AM
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Praying too.
__________________
Signed with facilitator 1/23/07 Profile completed & sent 2/07 M a t c h e d ! 8/23/07  Cameron is born 11/10/07 FINALIZED!!! 4/3/08  Cameron is diagnosed with Hypoplastic Left Heart Syndrome 11/10/07 Life is beautiful, but it's complicated. We barely make it. We don't need to understand, There are miracles, miracles. Yeah, life is beautiful. Our hearts, they beat and break. (Vega 4)
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#13
08-20-2009, 05:14 PM
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Prayers were answered...GREAT NEWS and much THANKS!!!!!!!!!
 Alex did great through the procedure...which included having both eyes patched, covered in black tape, and then a black inch thick mask placed over all of that for 45 minutes. This was prior to the 'giggle juice'...but he remained completely calm...everyone was thrilled and stunned. I am so proud of him...he is so brave. I was very nervous about him going under this time...but no need to worry...the doctors and entire staff were great and knowledgeable....and DS recovered perfectly. Now onto the best news...his ophthalmologist was wrong!!! I have never been so happy...Alex has 'perfectly normal retinas' according to the neuro ophthalmologist. He is considered to 'simply have motor nystagmus and his vision will not get worse.' In fact, we will continue to patch in hopes that the weaker eye will improve. I was certain we were getting bad news today...I had prepared myself...so this was wonderful news...and a complete surprise. Yes his vision is still 'low' in one eye (20/150..meaning he can only read the second line...the one below the big 'E'...on the chart)...but it may be correctable. Works for us! And I have to say...Bascom Palmer deserves their number one rating...they were beyond impressive. I have never had such a pleasant experience as we had there. Not only are they great on the medical side...their 'customer service' was certainly a step above. Prayers were answered today!! 
__________________
Proud Mommy to two...who have taught me I can not change their pasts but I can change me and the way I parent them~ *Yaya~My Siberian Sweetie ~born in 2001~Home 2002~Now 8 and a 'Tween', and in 3rd grade. She's all girl!!! *Bubbs~My Samaran Sunshine~born in 2003~Home 2004~now 6, in Kindy and such a sweet, silly & special boy! 'My wish, for you, is that this life becomes all that you want it to, your dreams stay big, and your worries stay small, You never need to carry more than you can hold, and while you're out there getting where you're getting to, I hope you know somebody loves you, and wants the same things too, Yeah, this, is my wish.' ~"My Wish" by Rascal Flatts
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#14
08-20-2009, 05:59 PM
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I am so glad to hear his appointment went well and you got good news!
__________________
Debbie - Mom to 3 Including 2 from Guatemala Community Moderator
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#15
08-20-2009, 08:05 PM
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Yippeee - What great news! So happy for you guys!
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A Mom No Longer Waiting! Tver, Russia - Oct 2003
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