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#1
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Cystic Fibrosis
Hello! Hubby and I are in the visiting process with two boys - both with CF, the older one also with diabetes. Thought I would see if anyone out there has experience with this, has any advice to share?
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Mom to 12 yo and 14yo boys. Matched May 18th. Home June19th. Waiting to adopt. Foster Mom to 6 kiddos. All reunited. ![]() When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has been opened for us. ~Helen Keller |
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#2
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You're doing a wonderful thing!
Hi, I'm Robin- I am 24 and have Cystic Fibrosis. I was actually on here looking to see how agencies felt about people with Cystic Fibrosis adopting children as having them can be difficult for people with CF and I read your post. I wanted to offer up my contact info to you incase you had any questions. I'm sure you have resources and info on CF, but I thought it couldn't hurt to offer anyway- you're doing a wonderful thing and I wish you all the best of luck!
~Robin rabiddustbunny2000@yahoo.com |
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#3
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I probably have little to offer - as Robin's experience would be way more helpful. Our neighbor has CF (11 years old)...I know that there are swings in his quality of life. LOADS of medication daily - but his family believes firmly in letting him 'do his thing' - he's a great athlete and participates fully at school. There are times when he's out for weeks at the hospital. It's hard on his mom and dad...just so hard to see your kiddo sick.
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"When life gives you lemons, you make lemonade. I have several stands." James Brady http://kretzklan.blogspot.com/ |
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