[Prettyboicris]

Has anyone here ever fostered/ adopted a child with Kawasaki ? I am familiar with it but I was wondering for people on this forum if you have experienced a child with Kawasaki what were some of the challenges and or issues that you had to deal with?

[MamaS]

I have not fostered/adopted but my cousin's son developed Kawasaki. After the initial hospitalization, he was fine. He lived a normal life -- scouts, skateboarding, football, etc. The only differences were that he could not take aspirin or aspirin products (due to chance of blood thinning) and he had to have an echo-cardiogram every year until he was 15 years old, then every 2 years until he was 21.

[Prettyboicris]

Thanks for the reply.

[Dickons]

Welcome to the world of rare disease. I have a rare disease and you need a support system in place to share information, tips on how things worked, vents, pity parties, laughter, tears and comfort. Please research and find a group you are comfortable with.

Kawasaki Disease Foundation
Kawasaki syndrome

Living with a rare disease also isolates you as it is hard being the only person you know that has the disease or even 'gets' what is wrong with you after you explain. I have also had to explain what my disease was to my new family doctor, which makes sense seeing as there are 6-7,000 rare diseases that are known and how could anyone know all.

Having a rare disease is a challenge all own it's own. Being a parent of a child with a rare disease would have it's own set of challenges...

All the best,
Dickons