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#1
01-26-2008, 12:19 PM
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Cornelia de Lange syndrome?
Hi,
I'm interested in a 2-1/2 yr old girl with Cornelia de Lange syndrome. I've been told by her CW that it's very mild, but when I look at the CDL websites I'm really overwhelmed. I realize a lot of it depends on the severity she has, but I'm wondering if there are any families out there who are parenting a child with Cornelia de Lange syndrome? I'd appreciate any info/insights you may have. Thanks, Sandy
__________________
Proud foster mama of many;
Proud transracial adoptive mama of:
J, age 9-1/2, and Q, age 7 (OMG!!!)
Still hoping for more kids.....
 Nellie (the cat), adopted stray
"Friends are the family you choose."
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#2
01-27-2008, 07:42 PM
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No help here, specifically. Just wanted to say that I was TERRIFIED!!!!!!!!!!!!!!!! before I got Teeter. And now, all his issues are just "normal" for us. So, I would encourage you to educate yourself, but remember its so normal to be scared, even for a "normal" kid... all the more so for a medically fragile child.
__________________
Mama to Pixie  and Tucker  both two, both adorable, both adopted.
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