[mommytoEli]

I know MANY of our kiddos have been dx with sensory integration/sensory processing issues, but i wonder if we have any who have been dx on the autism spectrum?

i've been wondering about eli alot lately. we met a family today whose dd is autistic.....when they heard eli was dx with si they said, "our dd was dx with that when she was 2....and later was dx as autistic" sigh.

anyone?

[Mindybeth6]

Oh Brook:-( It's hard to say, while some characteristics are surely evident at this age. I know Mikayla is not and her OT has confirmed that, but it's just because she doesn't show any characterisitcs and she is more of a sensory seeker where children on the spectrum tend, but not always, more of sensory NON-seekers in may aspects. How is he with you? Eye contact? Hugs and affection? Socially? These can be just SOME of the things to look for, but you prob. already know that. I don't know any Guat tots on the spectrum yet, but it's hard to say since our little ones are still pretty small....PM me or e-mail me if you need to chat and I say talk to an OT or psych and see what they say. Have you signed up for the program yet in TN?

[TyVicDanEm]

With autism, the ealier you find out, the better. If you have concerns, ask your pediatrician for the early intervention phone number in your area. You will get complete evals, and, even though they can only evaluate and not diagnos.....if they have any concerns, they will send you to the specialists who can diagnos.
good luck !

[w8ting4Thomas]

Can I ask a REALLY DUMB question here? What is "sensory seeking" and the description of the disorder eli has been diagnosed with?
Thanks

[SKL]

I have one daughter who, if you didn't know her history, could be suspected to be autistic. She has a really hard time with new situations. Basically she is an introvert (like her mama) who is still healing from the trauma that was her adoption. When somebody new comes into her life and looks like they might be staying, she reacts by withdrawing. It takes her a long time to bounce back, too. Because I have pretty much the same personality she does, I can usually relate to her reactions, and I know I'm not autistic. But, I could definitely see how some people would wonder.

I guess what I'm saying is that Eli's behaviors might be related to healing rather than autism. Like Mindy said, it may simply be too early to tell.

[TwoBoystoLove]

Our sons is showing signs of Autism. It is a very difficult diagnosis as he is also showing signs of mental retardation. We have another appointment at Doernbecher's Children's Hospital in a couple of weeks for more testing. For now they have labeled him with PDD so he can get specialized EI services.

[Mindybeth6]

To the person that asked about Sensory:
It is called Sensory Integration/Procesing Dysfunction/Disorder and it actually very common in adopted children. Here is a list of the signs. Mikayla has this and is considered a "seeker" or what is called UNDER-Responsive for the most part. It's a VERY long list but here it is and please know that your child doesn't have to have signs in EVERY category. Mikayla only shows signs in a few, not all. SID/SPD is all over the board and one child who may have it may be nothing like the next child that has it.

Signs Of Tactile Dysfunction:

1. Hypersensitivity To Touch (Tactile Defensiveness)

__ becomes fearful, anxious or aggressive with light or unexpected touch

__ as an infant, did/does not like to be held or cuddled; may arch back, cry, and pull away

__ distressed when diaper is being, or needs to be, changed

__ appears fearful of, or avoids standing in close proximity to other people or peers (especially in lines)

__ becomes frightened when touched from behind or by someone/something they can not see (such as under a blanket)

__ complains about having hair brushed; may be very picky about using a particular brush

__ bothered by rough bed sheets (i.e., if old and "bumpy")

__ avoids group situations for fear of the unexpected touch

__ resists friendly or affectionate touch from anyone besides parents or siblings (and sometimes them too!)

__ dislikes kisses, will "wipe off" place where kissed

__ prefers hugs

__ a raindrop, water from the shower, or wind blowing on the skin may feel like torture and produce adverse and avoidance reactions

__ may overreact to minor cuts, scrapes, and or bug bites

__ avoids touching certain textures of material (blankets, rugs, stuffed animals)

__ refuses to wear new or stiff clothes, clothes with rough textures, turtlenecks, jeans, hats, or belts, etc.

__ avoids using hands for play

__ avoids/dislikes/aversive to "messy play", i.e., sand, mud, water, glue, glitter, playdoh, slime, shaving cream/funny foam etc.

__ will be distressed by dirty hands and want to wipe or wash them frequently

__ excessively ticklish

__ distressed by seams in socks and may refuse to wear them

__ distressed by clothes rubbing on skin; may want to wear shorts and short sleeves year round, toddlers may prefer to be naked and pull diapers and clothes off constantly

__ or, may want to wear long sleeve shirts and long pants year round to avoid having skin exposed

__ distressed about having face washed

__ distressed about having hair, toenails, or fingernails cut

__ resists brushing teeth and is extremely fearful of the dentist

__ is a picky eater, only eating certain tastes and textures; mixed textures tend to be avoided as well as hot or cold foods; resists trying new foods

__ may refuse to walk barefoot on grass or sand

__ may walk on toes only


2. Hyposensitivity To Touch (Under-Responsive):

__ may crave touch, needs to touch everything and everyone

__ is not aware of being touched/bumped unless done with extreme force or intensity

__ is not bothered by injuries, like cuts and bruises, and shows no distress with shots (may even say they love getting shots!)

__ may not be aware that hands or face are dirty or feel his/her nose running

__ may be self-abusive; pinching, biting, or banging his own head

__ mouths objects excessively

__ frequently hurts other children or pets while playing

__ repeatedly touches surfaces or objects that are soothing (i.e., blanket)

__ seeks out surfaces and textures that provide strong tactile feedback

__ thoroughly enjoys and seeks out messy play

__ craves vibrating or strong sensory input

__ has a preference and craving for excessively spicy, sweet, sour, or salty foods

3. Poor Tactile Perception And Discrimination:

__ has difficulty with fine motor tasks such as buttoning, zipping, and fastening clothes

__ may not be able to identify which part of their body was touched if they were not looking

__ may be afraid of the dark

__ may be a messy dresser; looks disheveled, does not notice pants are twisted, shirt is half un tucked, shoes are untied, one pant leg is up and one is down, etc.

__ has difficulty using scissors, crayons, or silverware

__ continues to mouth objects to explore them even after age two

__ has difficulty figuring out physical characteristics of objects; shape, size, texture, temperature, weight, etc.

__ may not be able to identify objects by feel, uses vision to help; such as, reaching into backpack or desk to retrieve an item
Vestibular Sense: input from the inner ear about equilibrium, gravitational changes, movement experiences, and position in space.

Signs Of Vestibular Dysfunction:

1. Hypersensitivity To Movement (Over-Responsive):

__ avoids/dislikes playground equipment; i.e., swings, ladders, slides, or merry-go-rounds

__ prefers sedentary tasks, moves slowly and cautiously, avoids taking risks, and may appear "wimpy"

__ avoids/dislikes elevators and escalators; may prefer sitting while they are on them or, actually get motion sickness from them

__ may physically cling to an adult they trust

__ may appear terrified of falling even when there is no real risk of it

__ afraid of heights, even the height of a curb or step

__ fearful of feet leaving the ground

__ fearful of going up or down stairs or walking on uneven surfaces

__ afraid of being tipped upside down, sideways or backwards; will strongly resist getting hair washed over the sink

__ startles if someone else moves them; i.e., pushing his/her chair closer to the table

__ as an infant, may never have liked baby swings or jumpers

__ may be fearful of, and have difficulty riding a bike, jumping, hopping, or balancing on one foot (especially if eyes are closed)

__ may have disliked being placed on stomach as an infant

__ loses balance easily and may appear clumsy

__ fearful of activities which require good balance

__ avoids rapid or rotating movements

2. Hyposensitivity To Movement (Under-Responsive):

__ in constant motion, can't seem to sit still

__ craves fast, spinning, and/or intense movement experiences

__ loves being tossed in the air

__ could spin for hours and never appear to be dizzy

__ loves the fast, intense, and/or scary rides at amusement parks

__ always jumping on furniture, trampolines, spinning in a swivel chair, or getting into upside down positions

__ loves to swing as high as possible and for long periods of time

__ is a "thrill-seeker"; dangerous at times

__ always running, jumping, hopping etc. instead of walking

__ rocks body, shakes leg, or head while sitting

__ likes sudden or quick movements, such as, going over a big bump in the car or on a bike

3. Poor Muscle Tone And/Or Coordination:

__ has a limp, "floppy" body

__ frequently slumps, lies down, and/or leans head on hand or arm while working at his/her desk

__ difficulty simultaneously lifting head, arms, and legs off the floor while lying on stomach ("superman" position)

__ often sits in a "W sit" position on the floor to stabilize body__ fatigues easily!

__ compensates for "looseness" by grasping objects tightly

__ difficulty turning doorknobs, handles, opening and closing items

__ difficulty catching him/her self if falling

__ difficulty getting dressed and doing fasteners, zippers, and buttons

__ may have never crawled as an baby

__ has poor body awareness; bumps into things, knocks things over, trips, and/or appears clumsy

__ poor gross motor skills; jumping, catching a ball, jumping jacks, climbing a ladder etc.

__ poor fine motor skills; difficulty using "tools", such as pencils, silverware, combs, scissors etc.

__ may appear ambidextrous, frequently switching hands for coloring, cutting, writing etc.; does not have an established hand preference/dominance by 4 or 5 years old

__ has difficulty licking an ice cream cone

__ seems to be unsure about how to move body during movement, for example, stepping over something

__ difficulty learning exercise or dance steps
Proprioceptive Sense: input from the muscles and joints about body position, weight, pressure, stretch, movement, and changes in position in space.

Signs Of Proprioceptive Dysfunction:

1. Sensory Seeking Behaviors:

__ seeks out jumping, bumping, and crashing activities

__ stomps feet when walking

__ kicks his/her feet on floor or chair while sitting at desk/table

__ bites or sucks on fingers and/or frequently cracks his/her knuckles

__ loves to be tightly wrapped in many or weighted blankets, especially at bedtime

__ prefers clothes (and belts, hoods, shoelaces) to be as tight as possible

__ loves/seeks out "squishing" activities

__ enjoys bear hugs__ excessive banging on/with toys and objects

__ loves "roughhousing" and tackling/wrestling games

__ frequently falls on floor intentionally

__ would jump on a trampoline for hours on end

__ grinds his/her teeth throughout the day

__ loves pushing/pulling/dragging objects

__ loves jumping off furniture or from high places

__ frequently hits, bumps or pushes other children

__ chews on pens, straws, shirt sleeves etc.

2. Difficulty With "Grading Of Movement":

__ misjudges how much to flex and extend muscles during tasks/activities (i.e., putting arms into sleeves or climbing)

__ difficulty regulating pressure when writing/drawing; may be too light to see or so hard the tip of writing utensil breaks

__ written work is messy and he/she often rips the paper when erasing

__ always seems to be breaking objects and toys

__ misjudges the weight of an object, such as a glass of juice, picking it up with too much force sending it flying or spilling, or with too little force and complaining about objects being too heavy

__ may not understand the idea of "heavy" or "light"; would not be able to hold two objects and tell you which weighs more

__ seems to do everything with too much force; i.e., walking, slamming doors, pressing things too hard, slamming objects down

__ plays with animals with too much force, often hurting them

Signs Of Auditory Dysfunction: (no diagnosed hearing problem)

1. Hypersensitivity To Sounds (Auditory Defensiveness):

__ distracted by sounds not normally noticed by others; i.e., humming of lights or refrigerators, fans, heaters, or clocks ticking
__ fearful of the sound of a flushing toilet (especially in public bathrooms), vacuum, hairdryer, squeaky shoes, or a dog barking
__ started with or distracted by loud or unexpected sounds
__ bothered/distracted by background environmental sounds; i.e., lawn mowing or outside construction
__ frequently asks people to be quiet; i.e., stop making noise, talking, or singing
__ runs away, cries, and/or covers ears with loud or unexpected sounds
__ may refuse to go to movie theaters, parades, skating rinks, musical concerts etc.
__ may decide whether they like certain people by the sound of their voice

2. Hyposensitivity To Sounds (Under-Registers):

__ often does not respond to verbal cues or to name being called
__ appears to "make noise for noise's sake"
__ loves excessively loud music or TV
__ seems to have difficulty understanding or remembering what was said
__ appears oblivious to certain sounds
__ appears confused about where a sound is coming from
__ talks self through a task, often out loud
__ had little or no vocalizing or babbling as an infant
__ needs directions repeated often, or will say, "What?" frequently

Signs Of Oral Input Dysfunction:

1. Hypersensitivity To Oral Input (Oral Defensiveness):

__ picky eater, often with extreme food preferences; i.e., limited repertoire of foods, picky about brands, resistive to trying new foods or restaurants, and may not eat at other people's houses)
__ may only eat "soft" or pureed foods past 24 months of age
__ may gag with textured foods
__ has difficulty with sucking, chewing, and swallowing; may choke or have a fear of choking
__ resists/refuses/extremely fearful of going to the dentist or having dental work done
__ may only eat hot or cold foods
__ refuses to lick envelopes, stamps, or stickers because of their taste
__ dislikes or complains about toothpaste and mouthwash
__ avoids seasoned, spicy, sweet, sour or salty foods; prefers bland foods

2. Hyposensitivity To Oral Input (Under-Registers)

__ may lick, taste, or chew on inedible objects
__ prefers foods with intense flavor; i.e., excessively spicy, sweet, sour, or salty
__ excessive drooling past the teething stage
__ frequently chews on hair, shirt, or fingers
__ constantly putting objects in mouth past the toddler years
__ acts as if all foods taste the same
__ can never get enough condiments or seasonings on his/her food
__ loves vibrating toothbrushes and even trips to the dentist

Signs Of Olfactory Dysfunction (Smells):

1. Hypersensitivity To Smells (Over-Responsive):

__ reacts negatively to, or dislikes smells which do not usually bother, or get noticed, by other people
__ tells other people (or talks about) how bad or funny they smell
__ refuses to eat certain foods because of their smell
__ offended and/or nauseated by bathroom odors or personal hygiene smells
__ bothered/irritated by smell of perfume or cologne
__ bothered by household or cooking smells
__ may refuse to play at someone's house because of the way it smells
__ decides whether he/she likes someone or some place by the way it smells

2. Hyposensitivity To Smells (Under-Responsive):

__ has difficulty discriminating unpleasant odors
__ may drink or eat things that are poisonous because they do not notice the noxious smell
__ unable to identify smells from scratch 'n sniff stickers
__ does not notice odors that others usually complain about
__ fails to notice or ignores unpleasant odors
__ makes excessive use of smelling when introduced to objects, people, or places
__ uses smell to interact with objects

Signs Of Visual Input Dysfunction (No Diagnosed Visual Deficit):

1. Hypersensitivity To Visual Input (Over-Responsiveness)

__ sensitive to bright lights; will squint, cover eyes, cry and/or get headaches from the light
__ has difficulty keeping eyes focused on task/activity he/she is working on for an appropriate amount of time
__ easily distracted by other visual stimuli in the room; i.e., movement, decorations, toys, windows, doorways etc.
__ has difficulty in bright colorful rooms or a dimly lit room
__ rubs his/her eyes, has watery eyes or gets headaches after reading or watching TV
__ avoids eye contact
__ enjoys playing in the dark

2. Hyposensitivity To Visual Input (Under-Responsive Or Difficulty With Tracking, Discrimination, Or Perception):

__ has difficulty telling the difference between similar printed letters or figures; i.e., p & q, b & d, + and x, or square and rectangle
__ has a hard time seeing the "big picture"; i.e., focuses on the details or patterns within the picture
__ has difficulty locating items among other items; i.e., papers on a desk, clothes in a drawer, items on a grocery shelf, or toys in a bin/toy box
__ often loses place when copying from a book or the chalkboard
__ difficulty controlling eye movement to track and follow moving objects
__ has difficulty telling the difference between different colors, shapes, and sizes
__ often loses his/her place while reading or doing math problems
__ makes reversals in words or letters when copying, or reads words backwards; i.e., "was" for "saw" and "no" for "on" after first grade
__ complains about "seeing double"
__ difficulty finding differences in pictures, words, symbols, or objects
__ difficulty with consistent spacing and size of letters during writing and/or lining up numbers in math problems
__ difficulty with jigsaw puzzles, copying shapes, and/or cutting/tracing along a line
__ tends to write at a slant (up or down hill) on a page
__ confuses left and right
__ fatigues easily with schoolwork
__ difficulty judging spatial relationships in the environment; i.e., bumps into objects/people or missteps on curbs and stairs

Auditory-Language Processing Dysfunction:

__ unable to locate the source of a sound
__ difficulty identifying people's voices
__ difficulty discriminating between sounds/words; i.e., "dare" and "dear"
__ difficulty filtering out other sounds while trying to pay attention to one person talking
__ bothered by loud, sudden, metallic, or high-pitched sounds
__ difficulty attending to, understanding, and remembering what is said or read; often asks for directions to be repeated and may only be able to understand or follow two sequential directions at a time
__ looks at others to/for reassurance before answering
__ difficulty putting ideas into words (written or verbal)
__ often talks out of turn or "off topic"
__ if not understood, has difficulty re-phrasing; may get frustrated, angry, and give up
__ difficulty reading, especially out loud (may also be dyslexic)
__ difficulty articulating and speaking clearly
__ ability to speak often improves after intense movement

Social, Emotional, Play, And Self-Regulation Dysfunction:

Social:

__ difficulty getting along with peers
__ prefers playing by self with objects or toys rather than with people
__ does not interact reciprocally with peers or adults; hard to have a "meaningful" two-way conversation
__ self-abusive or abusive to others
__ others have a hard time interpreting child's cues, needs, or emotions
__ does not seek out connections with familiar people

Emotional:

__ difficulty accepting changes in routine (to the point of tantrums)
__ gets easily frustrated
__ often impulsive
__ functions best in small group or individually
__ variable and quickly changing moods; prone to outbursts and tantrums
__ prefers to play on the outside, away from groups, or just be an observer
__ avoids eye contact
__ difficulty appropriately making needs known

Play:

__ difficulty with imitative play (over 10 months)
__ wanders aimlessly without purposeful play or exploration (over 15 months)
__ needs adult guidance to play, difficulty playing independently (over 18 months)
__ participates in repetitive play for hours; i.e., lining up toys cars, blocks, watching one movie over and over etc.

Self-Regulation:

__ excessive irritability, fussiness or colic as an infant
__ can't calm or soothe self through pacifier, comfort object, or caregiver
__ can't go from sleeping to awake without distress
__ requires excessive help from caregiver to fall asleep; i.e., rubbing back or head, rocking, long walks, or car rides

Internal Regulation (The Interoceptive Sense):

__ becoming too hot or too cold sooner than others in the same environments; may not appear to ever get cold/hot, may not be able to maintain body temperature effectively
__ difficulty in extreme temperatures or going from one extreme to another (i.e., winter, summer, going from air conditioning to outside heat, a heated house to the cold outside)
__ respiration that is too fast, too slow, or cannot switch from one to the other easily as the body demands an appropriate respiratory response
__ heart rate that speeds up or slows down too fast or too slow based on the demands imposed on it
__ respiration and heart rate that takes longer than what is expected to slow down during or after exertion or fear
__ severe/several mood swings throughout the day (angry to happy in short periods of time, perhaps without visible cause)
__ unpredictable state of arousal or inability to control arousal level (hyper to lethargic, quickly, vacillating between the two; over stimulated to under stimulated, within hours or days, depending on activity and setting, etc.)
__ frequent constipation or diarrhea, or mixed during the same day or over a few days
__ difficulty with potty training; does not seem to know when he/she has to go (i.e., cannot feel the necessary sensation that bowel or bladder are full
__ unable to regulate thirst; always thirsty, never thirsty, or oscillates back and forth
__ unable to regulate hunger; eats all the time, won't eat at all, unable to feel full/hungry
__ unable to regulate appetite; has little to no appetite and/or will be "starving" one minute then full two bites later, then back to hungry again (prone to eating disorders and/or failure to thrive)

[mommytoEli]

Originally Posted by TwoBoystoLove

Our sons is showing signs of Autism. It is a very difficult diagnosis as he is also showing signs of mental retardation. We have another appointment at Doernbecher's Children's Hospital in a couple of weeks for more testing. For now they have labeled him with PDD so he can get specialized EI services.

i'm sorry.

[mommytoEli]

eli has had his eval already...we are waiting on some medical records. i think he did too well to qualify for anything.

he totally makes eye contact...but that is fairly new and inconsistent. still doesn't love hugs and affection, but is getting better. we are still having all the same probelms we had before.....and the anger issues are getting worse. he is clearly frustrated. i'd probably be mad too if i fell on my face all day long.

Originally Posted by Mindybeth6

Oh Brook:-( It's hard to say, while some characteristics are surely evident at this age. I know Mikayla is not and her OT has confirmed that, but it's just because she doesn't show any characterisitcs and she is more of a sensory seeker where children on the spectrum tend, but not always, more of sensory NON-seekers in may aspects. How is he with you? Eye contact? Hugs and affection? Socially? These can be just SOME of the things to look for, but you prob. already know that. I don't know any Guat tots on the spectrum yet, but it's hard to say since our little ones are still pretty small....PM me or e-mail me if you need to chat and I say talk to an OT or psych and see what they say. Have you signed up for the program yet in TN?

[mommytoEli]

Originally Posted by w8ting4Thomas

Can I ask a REALLY DUMB question here? What is "sensory seeking" and the description of the disorder eli has been diagnosed with?
Thanks

i think mindy answered the first part of your question. the second is eli has been dx so far with sensory integration disorder. basically he seeks and/or avoids sensory experiences to his detriment. like he eats non food items (think kitties, car parts, trash) and walks on his toes to avoid the feeling of his foot hitting the ground. the list is long.




anyway. i have just been thinking about all our kiddos struggling so much, and just wondered if anyone had crossed over from this to something else. it will be interesting to see in a few years where all of these kiddos are at in this. you know?

[Mindybeth6]

Oh Brook that makes me SO mad you don't think he will qualify there. I hate that. I have talked with several parents lately whose children were basically "turned down" because there symtoms weren't "bad" enough. It makes me soooo upset. Mikayla's aren't that "bad" either but the lucky "in" for us was her speech delay. With that and her SPD she will likely phase into the pre-school system here where I live (local schools). Keep me posted about it.

[angelkisses0102]

Is he is private therapy of any sort? With the anger issues, have you looked into or talked to an attachment therapist?

Many of the symptoms/characterists overlap for children with these type of issues...http://www.betterendings.org/Overlap...cteristics.pdf

I know for DS we had overlap...and at one point a potential autism/ASD dx...which turned into a significant developmental delay, generally shy child and severe speech impairment (after being kicked out of EI ST for being advanced.) Getting your DS evaluated by the proper professionals will help...but it often takes a few (unsuccessful) attempts to find the 'right' professional. If EI isn't helping you, you will probably need to go the private (expensive) route.

Good luck and trust that mommy gut...if it says something is off...it is usually right.

[krafmatic]

"Autism/autistic" has been brought up with my two a lot lately.

Both have sensory integration issues, and significant ones at that. Early Intervention has now told us they "don't qualify"...even though Gabe has yet to say a single word (he's great at receiving language skills but terrible at expressing due to low muscle tone and sensory issues in his mouth). We are doing private speech, OT, and attachment for both of them. It needs to be done, but holy cow the bills are racking up.

As far as autism goes, we are on a wait and see pattern. We should get more info after Ian's battery of nuerology tests, but most likely it will just mean more waiting and seeing what develops. Since we are already getting a broad spectrum of therapies I don't have a huge problem with not getting another label applied to them.

[Parisnroc]

Our DD is 14 months old and has hypotonia (low muscle tone) and SID. She is severly developmentally delayed. She is at a 3/4 month old level and will need speech therapy as well, someday. Whether autism will be a factor our therapist said we wouldn't know until she is older.

Absolutely push for therapy with the SID dx. OT makes a huge difference for kids that suffer from SID. Our DD has been put in a theratog suit and it helps her SID issues.

We are unsure what is the cause of our DD delays. We will be having genetic testing done, but can't get an appt until the first of the year.

[CarmJoeMom]

I have a daughter on the autism spectrum, and I will tell you that if you have concerns it is in your best interest to get your son tested. Not that the diagnosis is important, only that so many doors will open for you with therapy for your son if he is, in fact, autistic.

I had my daughter tested at 3 years old and my son was just tested at 2. They are confident that he's not on the spectrum (which my Mommy gut told me he wasn't, and that my daughter was). With that said, I believe strongly in Mommy's gut. If your questioning him, please please get it looked into further by developmental pediatricians.