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  #1  
Old 02-05-2009, 10:48 AM
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devildogwife devildogwife is offline
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Heart Cameron ate food by MOUTH!!!

Big, big day for us! We went in for Cameron to have a feeding evaluation and he actually let me feed him a tiny bit of sweet potatoes! And he enjoyed it; he didn't even seem afraid that I was by his mouth.

This is why this is so huge: He has been completely tube fed for over 10 months, due to all of his heart issues, forgetting how to swallow, paralyzed vocal cord etc. He was also intubated for basically 9 weeks and was suctioned so many times. During that time, he failed extubation at least 7 times in a row. It was depressing. At times we wondered if he'd ever get off the vent and off oxygen. Well, he pulled through and did, but wasn't able to eat like a healthy child does. He was afraid of us putting anything in or by his mouth for months, as he was afraid we'd do something painful like suctioning him.

But for some reason today, he let me feed him. And he wasn't afraid. And he enjoyed it! He actually got to taste something good. He looked like any other healthy kid with baby food all over him. I wanted to cry. We also visitied his nurses and his CT surgeon who told me over and over, "he looks so PINK and so big!" And then I remember, that's right, babies aren't supposed to look blue.

Now we get to work on tiny tastes every day and we'll continue working with OT/PT every week. for sharing in my proud mom moment.
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M a t c h e d ! 8/23/07 Cameron is born 11/10/07 FINALIZED!!! 4/3/08

Cameron is diagnosed with Hypoplastic Left Heart Syndrome 11/10/07

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Our hearts, they beat and break. (Vega 4)
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  #2  
Old 02-05-2009, 10:55 AM
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Congrats!! I hope you took pics of that babyfood covered face!!!

Way to go, Cameron!!
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what an awesome baby girl!!! Wish we went right to adoption!!
WE'VE FINALIZED!!! FOREVER OURS 4/28/06

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  #3  
Old 02-05-2009, 10:56 AM
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OMG, DDW! This is amazing!

What a wonderful day for your family...
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  #4  
Old 02-05-2009, 10:57 AM
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DDW - That is FANTASTIC! I know what a big deal this is and I am so happy for you and Cam. I am hoping feeding continues to go well (cuz honestley of all Em's challenges - the feeding issues were the hardest).

Also congrats on him being pink - what are his sats? Em is still in the 90's. (and does it seem weird that I am asking about his sats - this is a crazy world you and I are a part of , I guarantee most people never have conversations about what their kid's sats are)
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  #5  
Old 02-05-2009, 10:57 AM
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OMG, DDW, that just made me cry!!! How thrilling. Yes, share with us that sweet potato face!
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  #6  
Old 02-05-2009, 11:01 AM
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That is so awesome! When I saw your post I got so excited. Way to go Cameron!!!!!
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  #7  
Old 02-05-2009, 11:07 AM
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That's SO exciting!!!! I'm so thrilled for you guys! And YES, pics of his little face covered in food is gonna be a MUST!
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  #8  
Old 02-05-2009, 11:11 AM
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What an AWESOME accomplishment for C. Have fun introducing so many new tastes now and be sure to have a camera nearby so you can capture his reaction to his food likes and dislikes.
Good job momma!!

EZ
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  #9  
Old 02-05-2009, 11:12 AM
Fran27 Fran27 is offline
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That's huge, big congrats!!!
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  #10  
Old 02-05-2009, 11:19 AM
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That is HUGE!!!!! What an awesome accomplishment!
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  #11  
Old 02-05-2009, 11:21 AM
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DDW, what wonderful, joyous news! It brought happy tears to my eyes. Thanks for sharing Cameron's triumph with us today!
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What does not kill me, makes me stronger. ~ Friedrich Nietzsche, Twilight of the Idols, 1888, German Philosopher (1844-1900)

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  #12  
Old 02-05-2009, 11:23 AM
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YAY!!! It is wonderful...congrats!
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  #13  
Old 02-05-2009, 11:37 AM
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DDW, I actually have tears. I'm so happy for you all. I hope this is the wonderful beginning of many good things going into Cameron's mouth!!
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  #14  
Old 02-05-2009, 11:56 AM
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WOOO-HOOO! Great Job Cameron!!!


As the mom of a child with feeding/swallowing issues I so 'get' the joy you must be feeling!! Congrats and may everyday be a new adventure in tastes and textures!!
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*Yaya~My Siberian Sweetie ~born in 2001~Home 2002~Now 8 and a 'Tween', and in 3rd grade. She's all girl!!!

*Bubbs~My Samaran Sunshine~born in 2003~Home 2004~now 6, in Kindy and such a sweet, silly & special boy!


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  #15  
Old 02-05-2009, 12:00 PM
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That's my happy dance...

WAY TO GO, CAMERON
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