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#1
10-29-2008, 06:01 PM
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You know your child is on a lot of meds when...
his cardiogist looks at the typed medication list and says "aren't you overwhelmed?"
 That hadn't occured to me in so long! I just grabbed Cameron's list. It's almost an entire typed page. He gets medicine at different times starting at 6 am and ending at 12 am. Love that 6-hour break!  I go through over 30 different syringes a day, giving 11 different medications. Whenever Cameron is hospitalized, we have all of the nurses save his syringes so we can use them at home. We always have a great big bowl of them sitting on our counter, waiting to be washed. He gets heart, GI and respiratory meds. And the thing is, first day home from the hospital (IMO, at least a one-month stay), is always overwhelming, but we have such a great routine now, it truely doesn't overwhelm me. I have SO much to be thankful for. Modern medicine is at the top of my list. I am just finding it funny that this craziness has been my new normal for almost a year! Can you all believe that? It seems like just yesterday he was having his first emergency open heart surgery. He's just come so far.
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Proud wife, wife of a US Marine  Happy Heart Mom  Former foster mom to K (9 years old)Signed with facilitator 1/23/07  Profile completed & sent 2/07 M a t c h e d ! 8/23/07  Cameron is born 11/10/07  FINALIZED!!! 4/3/08  Cameron is diagnosed with Hypoplastic Left Heart Syndrome 11/10/07 Every day I will try and remember, I was chosen for him (and no other). I will always embrace that beautiful day....... When I became a "Heart Mother". 
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#2
10-29-2008, 06:56 PM
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I don't know how you do it...but I'm so grateful you do.
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Leigh 
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#3
10-29-2008, 07:10 PM
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You're an amazing mom - and I can't believe he's almost ONE!!!
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Jillian Anabel's mom Daughter's DOB 4/18/2006 Receive referral 6/1/2006 HOME AS A FAMILY 12/23/2006 June 2009 - Officially waiting for kiddo #2!
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#4
10-29-2008, 07:51 PM
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Ahhh DDW,
I'm with the others in wondering how you do this; but I know you must be a very strong and failth-filled person, indeed! I'm so glad Cameron has you as his momma. You and your little one continue to be in my thoughts and prayers. (((HUGS)))) Most Sincerely, Linny
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#5
10-30-2008, 04:32 PM
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That's amazing. I hope his first birthday will be a very happy celebration for all of you! Here's hoping his second year (and subsequent years) involve less hospital and more playtime at home.
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#6
10-30-2008, 06:15 PM
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I really want to see pics of his party!
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Domestic Fully Open Adoption "Openness is illuminating, clarity keeps things real and honesty keeps one's life free of regrets." - me.
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#7
10-30-2008, 06:21 PM
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I can't believe it either!!!
Happy Almost Birthday Cameron! Is he getting anything good? I won't tell! (I already have Ty's "big" gift for his birthday...have for 3 months...sad right?)
__________________
Our journey...http://callahancrew.blogspot.com/ Unless someone like you cares a whole awful lot, nothing is going to get better. It's not. ~Dr. Seuss 10-11/07 - We complete home study visits, requirements, and paperwork! 12/17/07 - Our home study is approved by the agency director. 01/27/08 - We get a  for a baby boy who is less than 24 hours old! We submit and get the call 1 hour later that we should get on a  !01/28/08 - Tyler is in our arms! He is less that 48 hours old  11/15/08 - FINALIZE in St. Louis on National Adoption Day! 06/25/09 - Start the offical paperwork to update our homestudy and make Tyler a big brother. 
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#8
10-30-2008, 06:57 PM
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Happy (almost) Birthday Cameron! I haven't been here as long as everyone else....but it's still so exciting to celebrate a bday! Especially for a kiddie who has been through so much.
I feel you on the meds though....I carry Kaiden's med list in my purse. One time we were at the ER for a fever and the doc couldn't believe I had them all memorized. I draw and administer them everyday!! Haha. I'm glad Cameron is doing so well. How is the mic-key button working for you guys?
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