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#1
10-29-2008, 06:01 PM
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You know your child is on a lot of meds when...
his cardiogist looks at the typed medication list and says "aren't you overwhelmed?"
 That hadn't occured to me in so long! I just grabbed Cameron's list. It's almost an entire typed page. He gets medicine at different times starting at 6 am and ending at 12 am. Love that 6-hour break!  I go through over 30 different syringes a day, giving 11 different medications. Whenever Cameron is hospitalized, we have all of the nurses save his syringes so we can use them at home. We always have a great big bowl of them sitting on our counter, waiting to be washed. He gets heart, GI and respiratory meds. And the thing is, first day home from the hospital (IMO, at least a one-month stay), is always overwhelming, but we have such a great routine now, it truely doesn't overwhelm me. I have SO much to be thankful for. Modern medicine is at the top of my list. I am just finding it funny that this craziness has been my new normal for almost a year! Can you all believe that? It seems like just yesterday he was having his first emergency open heart surgery. He's just come so far.
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Signed with facilitator 1/23/07  Profile completed & sent 2/07 M a t c h e d ! 8/23/07  Cameron is born 11/10/07  FINALIZED!!! 4/3/08  Cameron is diagnosed with Hypoplastic Left Heart Syndrome 11/10/07 Life is beautiful, but it's complicated. We barely make it. We don't need to understand, There are miracles, miracles. Yeah, life is beautiful. Our hearts, they beat and break. (Vega 4) 
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#2
10-29-2008, 06:56 PM
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I don't know how you do it...but I'm so grateful you do.
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Leigh 
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#3
10-29-2008, 07:10 PM
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You're an amazing mom - and I can't believe he's almost ONE!!!
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Jillian Anabel's mom Daughter's DOB 4/18/2006 Receive referral 6/1/2006 HOME AS A FAMILY 12/23/2006 June 2009: Officially waiting for kiddo #2! 7/2009: Profiled - decide it's not the right fit for our family. Back to waiting!  10/2009: Profiled - not selected. Back to waiting!
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#4
10-29-2008, 07:51 PM
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Ahhh DDW,
I'm with the others in wondering how you do this; but I know you must be a very strong and failth-filled person, indeed! I'm so glad Cameron has you as his momma. You and your little one continue to be in my thoughts and prayers. (((HUGS)))) Most Sincerely, Linny
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#5
10-30-2008, 04:32 PM
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That's amazing. I hope his first birthday will be a very happy celebration for all of you! Here's hoping his second year (and subsequent years) involve less hospital and more playtime at home.
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#6
10-30-2008, 06:15 PM
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I really want to see pics of his party!
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“Sometimes the strength of motherhood is greater than natural laws.” - Barbara Kingsolver "If you have love, you don't need to have anything else, and if you don't have it, it doesn't matter much what else you have." - Sir James M. Barrie "Nothing's gonna change my world." - John Lennon
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#7
10-30-2008, 06:21 PM
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I can't believe it either!!!
Happy Almost Birthday Cameron! Is he getting anything good? I won't tell! (I already have Ty's "big" gift for his birthday...have for 3 months...sad right?)
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Our journey...http://callahancrew.blogspot.com/ Unless someone like you cares a whole awful lot, nothing is going to get better. It's not. ~Dr. Seuss 10/07 - We start home study visits, requirements, and paperwork! 12/07 - Approved to adopt. 01/28/08 - Tyler is in our arms! He is less that 48 hours old! 11/15/08 - FINALIZE in St. Louis on National Adoption Day! 06/22/09 - Maybe we should do this again?  06/25/09 - Start the official paperwork to update our home study and make Tyler a big brother.  07/13/09 - Match with a 2.5 month old baby BOY! 07/28/09 - Matty is in our arms!    Created by MyFitnessPal.com - Free Diet Plans
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#8
10-30-2008, 06:57 PM
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Happy (almost) Birthday Cameron! I haven't been here as long as everyone else....but it's still so exciting to celebrate a bday! Especially for a kiddie who has been through so much.
I feel you on the meds though....I carry Kaiden's med list in my purse. One time we were at the ER for a fever and the doc couldn't believe I had them all memorized. I draw and administer them everyday!! Haha. I'm glad Cameron is doing so well. How is the mic-key button working for you guys?
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