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#1
08-28-2008, 04:48 PM
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I survived!
Cameron had his cardiac cath yesterday. He did great! We are already back home and he is doing great. A little more tired than usual, but doing good.
The good news: no open heart surgery (at least not right now). The possibly not so good news: it looks like he has the same condition his bfather has. Bfather had a heart transplant at age 19... For now, they are going to check Cameron every six months to try and stay on top of this so he does not ever get to the point where he would need a transplant. But it is a wait and see thing. So, I get to worry about it forever... At least we are finished for now.
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07/20/06 Cameron born 3/10/08 Spencer born January 2009: Officially licensed foster parent and SNAP approved! 7/11/09- First placement: Princess P 
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#2
08-28-2008, 04:51 PM
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Yay!!! SO glad to see this update Marci!!!! Extra hugs around the house tonight!!
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Thanksgivingmom Community Moderator Safe Haven First Mom in an Open Adoption Blogger: I Should Really Be Working
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#3
08-28-2008, 04:51 PM
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Marci that's great! Any time they don't have to operate is a good thing
. As for worrying we ALL get to worry for the rest of our lives. That's called being a mom. by the time he's 19 they will be fixing hearts with computers!I'm very happy for you guys.
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“Sometimes the strength of motherhood is greater than natural laws.” - Barbara Kingsolver "If you have love, you don't need to have anything else, and if you don't have it, it doesn't matter much what else you have." - Sir James M. Barrie "Nothing's gonna change my world." - John Lennon
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#4
08-28-2008, 04:54 PM
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Quote:
Yeah anything can happen in 19 years. Congrats on the good news!
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#5
08-28-2008, 05:43 PM
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Marci, thats really great news!
Congrats on the test results. Just think how much technology has advanced in 5 years, can you imagine what it will be in 19? The doctors don't seem to be overly concern by only scheduling check ups every 6 months. Sounds very positive to me... Hugs to the entire family! S
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1993 decided to start a family 1995 discovered problems 1995-1998 fertility Drs and surgeries 1999-2003 break from it all 2003-2005 thought about adoption but trying to find a way to afford it. 2006 decided to do whatever it took to create a family. Money should not decide a family! January 2006 gathering information applying for homestudy. July 2006 homestudy completed- we are officially waiting! July 06-March 09 Several situations that didn't work out.. Our baby will find us, until then...We are 4-everwaiting for our angel  It finally happened after over 2.5 years of waiting, our angel found us!!! ... Baby Girl Born March 10th! Home forever March 19th, 2009 
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#6
08-28-2008, 06:03 PM
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I know you're going to worry about it, but it really is good news. Checking 2x/yr will let them keep a great eye on it and jump on correction if needed vs letting it go.
Big hugs all around. Breathe now.
__________________
Decided to adopt 09/20/06  DTE 02/01/07 Referral 05/15/07, baby boy born 03/16/07 Ours! Officially Mama to Joshua 07/03/07 On our way 07/28/07 Home 08/07/07  US Readoption 4/16/08 Starting again 05/13/08  Waiting since 8/4/08 Phone call! Chosen for October situation 07/04/09 Baby Preston is here! Born 09/28/09 Home 10/10/09 
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#7
08-28-2008, 06:32 PM
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I am so glad that things went well this time and that there's some good new!
Hoping & praying that your little guy grows up strong and healthy! And that his mommy can find peace - I'm sure it's hard not to worry.
__________________
First Adoption: baby boy born August 06  Second Adoption: baby Girl born December 08  God has truly blessed us!
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#8
08-28-2008, 06:45 PM
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Marci, so glad that the cath went well. I know that was very stressful.
My nephew had open heart surgery at 15 to replace some valves. It's been 2 yrs now and he's doing great!!
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#9
08-28-2008, 10:43 PM
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I'm glad you're done for now. YIPPEE!!! I'm so happy for you guys that no surgery is needed now.
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#10
08-29-2008, 06:26 AM
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I agree, no surgery necessary is always good news.
But I also know what it feels like to know you have to keep worrying about the maybes. I can tell you this, at some point you make a choice to let tomorrow take care of itself and just deal with today. After that, things get a little less scary. But I don't think we ever stop watching or planning "just in case" that worst case scenario becomes a reality.
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Homestudy started 7/06 Homestudy finished 8/06 Officially waiting 9/12/06  Matched and met our beautiful baby girl 3/25/07 Finalized!!!! 10-25-07 
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#11
08-29-2008, 06:30 AM
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Marci, great news for you and your little trooper. I'm sorry that there is still this "unknown" but thank gosh they know and can monitor it.
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#12
08-29-2008, 06:39 AM
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I'm glad you got such great news. Know that getting checked every 6 months, really is a good thing. If they were really concerned, he'd be in there a lot more. It might help for you to know, my Cameron has been extremely sick, and before his 2nd, 4 month hospitalization, he was seen at least every 2 weeks by his CT surgeon and seen every month by his cardiologist. Every 6 months for your Cameron really is great! My Cameron may need a transplant in the not too distant future (we're not sure at this point), but you really can't spend every day worrying. You have to have hope that your child will be taken care of. I have to remind myself every day that I can control none of this and that God has a plan.
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Signed with facilitator 1/23/07  Profile completed & sent 2/07 M a t c h e d ! 8/23/07  Cameron is born 11/10/07 FINALIZED!!! 4/3/08 Cameron is diagnosed with Hypoplastic Left Heart Syndrome 11/10/07 Life is beautiful, but it's complicated. We barely make it. We don't need to understand, There are miracles, miracles. Yeah, life is beautiful. Our hearts, they beat and break. (Vega 4)
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#13
08-29-2008, 07:33 AM
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Glad it went well yesterday and I am hapy to hear he doesn't need surgery at this time. ((hugs))
__________________
Casey Proud Mommy of three! Hanna (6/05), Sofie (1/07), & Lilly (10/07)
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