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Old 12-12-2003, 12:39 PM
momto59 momto59 is offline
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Help with Down Syndrome

We have had 2 girls with Down Syndrome. They both were very "floppy" having very low muscle tone. A child w/DS will need to be in Early Intervention for Physical Therapy, therapy for speech and feeding issues as well as developmental. Both our girls (and common with most Down babies) had a very hard time with sucking a bottle They tend to push their tongue forward instead of sucking. They tend to need a little more support than kids w/o DS We used to roll soft blankets into a long roll and place it on each side of them. Their milestones will be delayed but the most celebrated when they come!! Both our girls were pretty easy and pretty content but that may have just been them. One thing that can be a little scary is that alot of times they can have a heart defect. One of our girls did, one didn't. Our 1st Fd had 'minor' surgery at 8 mos to correct a valve. She was home the next day and doing great. The most important thing would be to get them into Early Intervention they can give you plenty of help and suggestions. Other than that they are not much different than tour "typical" baby so just enjoy and good luck. (Our 1st FD is now 17 and the other is 8 and we still get to see them regularly.)
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