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The very best advice I get comes from other parents who have children with the same conditions. If you can find a support group that deals with those conditions that you are dealing with they can really help you a lot. In my case we have a couple of support groups for the missing limbs and a couple for the RAD. We do have a wheelchair van, we bought it used. My son has a power chair and so it can't be lifted into a car. We do have a ramp and we can get it into my son's pick up or into my minivan (if we fold down all the seats) but it's a royal pain. Right now he is in a manual while we wait for parts. While it's true we can't do hiking and stuff, we do find a lot of stuff to do together as a family. We did have to learn to call places ahead of time and research thier accesability.
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