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There is a yahoo group called chinaheartchildren which has a wealth of information. Jess has an ASD and stenosis. According to the IA doctor who looked at her file after we returned home, Jess was in cardiac failure when she was brought to the SWI and then to the hospital a couple of days later. You would never know it now - she is a bundle of energy to match any 3 year old. I also found waitingsnchildrenchina and waitingchildrenchina helpful although they aren't dedicated solely to heart issues.
Paula
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