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Mom of a child with seizures
When your daughter tells you that something is going to happen she is experiencing "aura"
The doctor that is taking care of your daughter is he/she a pediatric neurologist
From dealing with our son demand to be sent to a hospital that has specialties
We were sent to St.Louis Childrens Hospital in St.Louis and OH MY GOSH!
It will give you goose bumps
From our local peds. taking care of "it could be this or could be that"
They just jumped on him with both feet
He had hydrocephaly with no documented cause so basically he was in-operable but we were told "he will grow out of it"
They also told us if any infant needed a shunt he did but they couldn't operated they could find no deffects so the increase spinal fluid was causing all his seizures
It now has been 11 yrs and many times scared to death
to look at him now you wouldn't know anything was ever wrong
Be aggressive with these doctors if you feel uncomfortable about what you are being told
Until we felt ok they know what they are talking about did we feel good about what to do from here
Cindy
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Oct 2004 Signed with agency
Feb 2005 HS Completed
March 2005 I 171H rec'd
March 13 2005 Dob of Ref Abigail Grace
April 11 2005 Ref accepted!!!!!
June 7 2005 DNA FC SW
June 24 2005 It's a match 99.91%
July 12 2005 Family Court Decree
July 27 2005 issued pre-approval!!!!!!!
August 8,2005 entered PGN
August 18, 2005 OUT OF PGN!!!!!!!!
September 7,2005 GCBC!!!!!!
September 16,2005 notified PINK
September 25,2005 Gotcha Day
September 28,2005 HOME!!!!!!!!!!!!
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