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Old 10-29-2008, 06:01 PM
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devildogwife devildogwife is online now
Little Heart, Big Miracle

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Heart You know your child is on a lot of meds when...

his cardiogist looks at the typed medication list and says "aren't you overwhelmed?"

That hadn't occured to me in so long! I just grabbed Cameron's list. It's almost an entire typed page. He gets medicine at different times starting at 6 am and ending at 12 am. Love that 6-hour break! I go through over 30 different syringes a day, giving 11 different medications. Whenever Cameron is hospitalized, we have all of the nurses save his syringes so we can use them at home. We always have a great big bowl of them sitting on our counter, waiting to be washed. He gets heart, GI and respiratory meds. And the thing is, first day home from the hospital (IMO, at least a one-month stay), is always overwhelming, but we have such a great routine now, it truely doesn't overwhelm me. I have SO much to be thankful for. Modern medicine is at the top of my list.

I am just finding it funny that this craziness has been my new normal for almost a year! Can you all believe that? It seems like just yesterday he was having his first emergency open heart surgery. He's just come so far.
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Signed with facilitator 1/23/07 Profile completed & sent 2/07

M a t c h e d ! 8/23/07 Cameron is born 11/10/07 FINALIZED!!! 4/3/08

Cameron is diagnosed with Hypoplastic Left Heart Syndrome 11/10/07

Life is beautiful, but it's complicated.
We barely make it.
We don't need to understand,
There are miracles, miracles.

Yeah, life is beautiful.
Our hearts, they beat and break. (Vega 4)
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