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I cared for many patients in their 20s and 30s who had CF. Most got lung transplants. Most are dead now. Treatments are getting better so who knows what the future holds in store.
I knew one family with 4 children, 3 had CF.
I miss my patients with CF. Most were truly wonderful people and I grieve their passing.
Only you can decide what is best for you and your family. Most of these children require a lot of care--frequent hospitalizations, IV antibiotics, chest percussion. Yet they are truly wonderful people, just like all other kids. They are as deserving of a loving home as healthy kids. The question is, are you willing to give them the care and love they deserve? If not, pass on this baby.
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