Imerslund-Gräsbeck syndrome (anyone else had their child diagnosed with this?)
hi
Carmen has just recently been diagnosed with Imerslund-Gräsbeck syndrome. It's a geneticall inherited condition that means she can't absorb vitaminb12 and will get injections of this for the rest of her life. I am just extremely relieved that it is so treatable and she is now running around again like her old self. It has been a worrying time and now I am counting my blessings.
Apparently it is a very rare condition - but I just wanted to ask if anyone else had gotten this diagnosis for their child? I am wondering if it is more prevalent in Guatemala? and just trying to educate myself in general
many thanks in advance for any responses!
Mary-Kate
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