We never fostered, it was straight adoption with my son. Also, we didn't know about his CHD before he ws born.
My son is medically fragile and has the same CHD as Suz's daughter. We are currently 6 & 1/2 weeks into at least a 9 & 1/2 week PICU stay. My son was born very VERY sick and has come very far, but still has very far to go. Like Suz said, lots of appointments (sometimes 4 in one week), long hospital stays, learning how to monitor different things, use different equipment, feed different ways. For instance with my son, first time home I had to feed him with an NG tube, weigh him daily, record his feedings, give him meds (that you absolutely can never forget!), monitor his 02 sats, etc. Whenever we go home again, he'll be going home on oxygen (due to a paralyzed vocal cord), and possibly all the same stuff as before, including giving him shots in his stomach.
To be considered medically fragile, like Suz and athikers have said, the diagnosis is very serious.
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