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Hi, in my experience...
no, these children do not all end up in institutional situations. Unfortunately, some do, because there are not many families who are able to willingly put their very hearts on the line...
What state are you in? You might ask your social worker or your R&C worker about any trainings re: medically fragile children. In our state the lady who does those trainings has adopted more than one child who she knew in advance would die. She is an unbelievable lady. I would love to be like her when I grow up!
Are you interested in this topic because you are considering this for yourself or just fyi? Either way, it's a great subject.
We are medically fragile foster parents in KY and we were asked about a year ago to bring a boy home who was expected to live only a few hours up to a few days. I would have done it in a heartbeat, but I have 2 small birth children who I didn't want to ask to deal with watching someone die. KWIM?
Most of our children have had other issues that are not imminently life threatening, but are ongoing medical issues. We have one little boy right now that we are hoping to adopt if all goes well.
God Bless.
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