Thanks for your post ath - I'll have to check that one out
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Here are a couple of more helpful websites I've found on this journey:
CaringBridge. Free Websites That Support And Connect Loved Ones During Critical Illness. (allows parents to set-up a website they can update with photos, a journal, etc during a childs hospitalization, illness, etc.)
CarePages - Support and community for everyone coping with illness (same as caringbridge)
Home (Ronald McDonald House offers housing for families during their child's hospitlization or treatment)
Make-A-Wish Foundation : National Home Page (the Make-A-Wish Foundation® gives hope, strength and joy to children with life-threatening medical conditions)